Tuesday, April 24, 2012

Short Anagen & Gluten Free Update

We have officially abandoned gluten free living for Karley as of about a month ago (March '12).  After the first six weeks we didn't see any significant hair growth.  We then let up and things started to slide.  My husband and I went back and forth on whether or not we were seeing any growth. 

Friends and family thought it looked thicker but not really anything in length.  We were unsure and went on a couple weeks further.  We thought about going to see a pediatric dermatologist who does research at the University and then decided against it. 

A fellow member of the facebook group  [found by typing these words: Short & Loose Anagen Syndromes (SAS & LAS) ] had the opportunity to bring her daughter to a convention where 200 doctors studied her daughter.  They offered little advice and this is what she posted via the group page.  {re-posted here with permission}

Hi Moms! I posted that I was lucky enough to attend a convention with over 200 dermatologist. I attended the event, but unfortunately, I think that I educated them more than they educated me. :(. I only heard one piece of advice out of 200 dermatologist... and that advice left me in a state of confusion on what to do. I informed this particular Dr. (as I did with about 3/4 of them) that my daughter was on a gluten free diet, and asked if he had any insight into that. He nicely told me that by doing any vitamin, specific diet, ect. that I was wasting my energy! Ouch! You mean these past 2 months have been a waste when I thought I was seeing improvement?? He said the internet can be a very tricky place and getting false information seems to happen a lot. He used this example: If a mom posts ...online that they tried Burts Bees Wax and she saw growth from it, it was only because she tried it at X age when the hair was in a state of growth. He said the only thing there is, is Minoxidil and time. Hmmm... do we know more than him? Or is he right??? I have to believe he is correct in some aspects. As I was so confidant that I was seeing growth from the GF diet, I have also read that between the ages of 5 and 6 there is a significant amount of growth. My daughter is 5 1/2. Maybe it's her age helping me out and I just had awful timing with going GF. He said there was a lot more out there for LAS, but the truth is with SAS, you need time. Good luck moms! I am now faced with the descion on what to do with going GF. He also said that his 12 year old niece has SAS and she now has hair at her collar bone and it's all the same length. I asked him is his sister used to minoxidil for her daughter and he said they did nothing. Gave it time.
 
We were headed in this direction.  There were so many variables and so many unknowns with a gluten free diet.  It seemed that it could be so hit or miss and was it because of the diet or just luck?  We didn't see any significant growth while on a gluten free diet.  We also will still stay away from Minoxidil.  

I still monitor Karley's hair growth and do see a small small amount of growth in the very front of her "bangs".  I also do see more growth on both sides behind her ears.   This is the one place that I previously cut because these "tails" were so much longer and were growing further from the middle back and the sides in front of her ears.  Hope that makes sense and this growth has been since she is on a normal diet.  We do eat pretty healthy and I make most things from scratch and if I don't, I pretty much know what ingredients are in things and why.

I think the girls that the gluten free diet has worked for are girls with LAS (Loose Anagen Syndrome) but from what I might guess they could have also been in that age range of 5-6.  So hard to tell.  I'm not opposed nor am I convinced, it just didn't seem to work for us.

One of the reasons we were going to check into the doctor at the University is that I had heard of some additional vitamins from the facebook group.  I didn't want to chase down ideas or theories and put my daughter through trials if there wasn't some concrete evidence.  I really just want her to be a little girl and not experiment. 

Yesterday while we were outside playing the kids were drawing stick people and Karley mentioned that "Girls have long hair and boys have short hair, right Mom?"  "Actually Karley a lot of girls have short hair.  Some do have long hair.  And some boys have long hair or short hair."  Other than this, I haven't heard a peep about hair in months.

Either way, long or short, she's a gift from God and I want to make sure she knows this first and foremost.

5 comments:

  1. It sounds like you have your priorities in the right order, Tina! She IS a precious gift from God! I will be praying that you can enjoy her little girl days and let tomorrow worry about itself.

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    1. Thanks Heidi! It's much easier to be free of worry and trust in Jesus isn't it!?

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  2. She is beautiful and a precious gift from God!! God knew she'd go to you from the beginning of time and you are the best for her. She will do fine in life. Just look at her, she's an angel.

    Thank you for sharing this with us. I know, as a mother, it's hard to see something "wrong" with our kiddos. But, in God's eyes, there's nothing wrong.

    You will be in my prayers as you struggle and find out what will help.

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    1. So true Jamie.... {in God's eyes}.

      Thank you for your prayers! Right back at ya!

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  3. Thanks for sharing your story online. It helps to read words written from people going through the same thing!

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Thanks for making my day!